Gypsy News

News about the Rom/Roma/Gypsy along with environmental, wildlife and animal news and alerts.

Wednesday, December 10, 2008

Addressing race equality in health services for Gypsy, Travellers and other minority ethnic groups

Published by traceybignall for Race Equality Foundation in Health
Tuesday 9th December 2008 - 12:20pm

Gypsies and Travellers form diverse communities with some people living nomadic lives and others settled in authorised sites or within social housing. Both settled and nomadic groups experience difficulties in accessing health services despite research evidence of their poor health outcomes and greater need.

A lack of continuity of care during pregnancy, high levels of suicide and self-harm due to mental distress; and the inability to use palliative care services for those who are highly mobile, are some of the health issues faced. Some resources, such as the Pacesetters Programme, do have specific targets to improve these communities health locally, however, good practice still needs to be embedded within a national programme or a national strategy on Gypsy and Traveller health, according to Zoe Matthews in the Better Health Briefing paper on the health of Gypsies and Travellers in the UK.

This is one of a series of Better Health briefing papers produced by the Race Equality Foundation. Each briefing paper provides an overview of the key messages for practice on a range of topics for health practitioners and includes practice examples, list of resources and further reading.

The papers are part of a programme of work to improve the health; housing and social care provision to black and minority ethnic communities. The programme resources will help primary care providers in addressing health inequalities and developing good practice in catering for the health needs of diverse communities.

Equipping practitioners to embed race equality in practice and service provision is encouraged through national events, such as the forthcoming Mainstreaming Race Equality: using evidence to promote change in health services conference being held on Tuesday 10 March 2008 at the Kings Fund, London. This event will enable delegates to have a better understanding of what it means to ‘mainstream’ race equality and explore evidence of what works in meeting equality requirements and duties.

To register interest contact Tracey Bignall at the Foundation by email tracey@racefound.org.uk

Further information about the project, briefing paper and national conference is available on our website: www.raceequalityfoundation.org.uk

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Wednesday, November 19, 2008

Roma children dying of lead poisoning

By Paul Polansky
Monday, 17 November 2008

This month, Germany's second largest NGO, the "Society for Threatened Peoples" will be sending its Head of Mission for Kosovo, Paul Polansky, to the House of Commons, London and to the EU Headquarters in Brussels in an attempt to save 130 Roma families placed by the United Nations in camps with life-threatening conditions.

Below is a shortened version of the speech delivered by Mr. Polansky in the Brussels hearing.

Two hours from here by plane, in Eastern Europe, are two death camps, mainly for children under the age of six years.

If these children don’t die by the age of six, they will have irreversible brain damage for the rest of their short lives.

These camps have been running for nine years. They were built on the tailing stands of the biggest lead mine in Europe, and next to a toxic slagheap of 100 million tons.

These camps (there used to be four) were built by the UN administration in Kosovo and their implementing partner Action by Churches Working Together. The hurriedly assembled barracks were also built with old lead painted boards.

To date 77 people have died in these camps, mainly due to complications from lead poisoning. More than 50 women have also aborted because of the lead poisoning. One woman and her baby died at childbirth. During her pregnancy she was being treated for lead poisoning. After her death it was discovered by a well-known laboratory in Chicago that two of her surviving nine children has the highest lead levels in medical history.

According to medical experts from Germany and the United States who have visited the camps, every child conceived in these camps will be born with irreversible brain damage.

In November 1999, UNHCR took charge of homeless Gypsies and moved them to four hurriedly built camps on toxic wasteland, the only places the UN said were available. I protested, calling attention to UN officials and especially to the head of UNHCR in Pristina, that these toxic wastelands could be detrimental to the health of these IDPs (internally displaced people). UNHCR assured me that they had signed contracts with the local municipalities that these IDPs would be in these camps for only 45 days. At the end of 45 days, they would either have their homes rebuilt and moved back or would be taken as refugees to another country. Unfortunately, after almost nine years and many deaths, due to lead poisoning, these IDPs are still living on toxic wasteland.

During the summer of 2000, the UN health officer for Mitrovica was asked by the UN administrator Dr. Bernard Kouchner to do a medical survey of Mitrovica because so many UN police and French soldiers were found to have high levels of lead in their blood. In November 2000, the UN health officer Dr. Andrej Andrejew’s report was presented to UNMIK stating that most people living in the city of Mitrovica were suffering from lead poisoning. The report stated that the worst effected were the Gypsies living in the UN camps and recommended that the camps be evacuated and the areas fenced off so that the public could not accidentally wander in.

Instead of closing the Gypsy camps, the UN built a 1.5-kilometer jogging track between two of the camps and the toxic slag heaps. The UN put up signs in four languages calling this jogging track the Alley of Health. The UN also built on land next to 100 million tons of toxic waste a soccer field and a basketball court for the Gypsy children. They were not told that exercise, opening the lungs, would make them more vulnerable to lead poisoning.

Despite repeated appeals to help the Gypsies, especially those living in the three camps in the area of north Mitrovica, the UN did just the opposite. All food aid was suspended in 2002 saying it was time for the Gypsies to find their own supplies. In the Zitkovac camp the running water was cut off for up to six months at a time because the camp administer, Churches Working Together, felt the Gypsies were using too much water. In the end, the Zitkovac Gypsies had to walk four kilometers twice a day to get their drinking water. In all three camps, most of the Gypsies had to go through the local garbage cans to find their food.

In the summer of 2004, WHO made a special investigation of lead poisoning in the three camps after Jenita Mehmeti, a four-year-old girl, died of lead poisoning. She was not the first. Up to that point 28 people (mainly children and young adults) had died in the three camps, but Jenita was the first one to be treated for lead poisoning before she died. New blood samples taken by WHO showed that many children, the most vulnerable to lead poisoning, had lead levels higher than the WHO analyzer could register.

The standard procedure for medical treatment of lead poisoning requires immediate evacuation from the source of poisoning and hospitalization if lead levels are above 40 μg/dL. Irreversible brain damage usually begins at 10 μg/dL especially in children under the age of six whose immune systems have yet to develop. Many of the lead levels of the Gypsy children in these three camps were over 65 μg/dL, the highest level the WHO machine could read. WHO staff suspected that some children (because of their symptoms) had lead levels in the 80s and 90s. As it turned out, two children had a lead level of 120 μg/dL, the highest in medical history.

In November 2004, WHO presented their health report on the Gypsy camps to UNMIK, recommending immediate evacuation. Although there were precedents for the UN evacuating thousands of Albanians and Serbians in Kosovo when they faced life-threatening events, these Gypsies were not evacuated. The only measure that the UN took was to being bi-monthly meetings with UN agencies and other NGOs to study the problem. Although many NGOs including the International Committee for the Red Cross petitioned the UN to immediately evacuate these “death camps” within 24 hours, no action was taken by the UN until 2006.

In January 2006 the UN in Kosovo closed one of the Gypsy camps and moved 35 families to a new location, about 50 meters from their old camp. The new camp was called Osterode. It was formerly a French army NATO base in north Mitrovica but had been abandoned after many soldiers were found to have lead poisoning. In fact, all French soldiers serving there were told by French military doctors not to father a child for nine months after leaving the camp because of the high lead levels in their blood.

Nevertheless, the UN in their wisdom spent more than 500,000 euros (donated by the German government) to refurbish this camp. Feeling that most of the lead poisoning came from the ground, the UN cemented over much of the area and then obtained a certificate from CDC, the Center for Disease Control, a US funded agency, that the camp was “lead safe.” Although all these camps were built on the tailing stands of the Trepca lead mines, most of the lead pollution comes through the air from the 100 million tons of toxic slag heaps in front of the camps.

In September 2006, at his first press conference as head of the UN in Kosovo, Herr Joachim Ruecker proudly announced that the UN was doing something to help these Gypsies dying of lead poisoning. In addition to moving them from their camps to Osterode, which he declared was not lead safe but “lead safer” the UN would begin to treat lead poisoning with a better diet. For the first time in four years food aid would now be given to the Gypsies so that they would no longer have to go through the local garbage cans. The US Office in Pristina donated $1,000,000 for this “better diet.”

It is well known to medical doctors that a proper diet can lower lead leads by about 20%, but only if the affected person is first removed from the source of poisoning. In the case of these infected Gypsies, reducing their lead levels by 20% would still leave them with life-threatening levels. For the first time in four years, the UN also provided a daily medical staff to look after the health of these Gypsies. Unfortunately, lead poisoning can only be treated once the patient is removed from the source of lead poisoning. In any event, the medical staff later resigned because they had not been paid for months.

By spring 2006 two of the Gypsy camps (Zitkovac and Kablare) had been closed with more than 100 families now living in Osterode. After three months, blood samples were taken and according to UNMIK the health of the Gypsies was improving, thanks to their new diet, and lead levels were falling. However, WHO and UNMIK refused to share copies of these blood results with the public or even with the Gypsy families themselves. Later I was given copies of the tests by a disgruntled WHO staffer who was tired of the cover up. The test results showed that the lead levels had not only risen, but that Osterode, the lead free camp now had higher lead levels than the nine-year-old Cesmin Lug camp.

In 2006 the UN announced that the only solution for the Gypsies living on or near the toxic wastelands was to rebuild their homes in their old neighborhood and move them back. Thus the UN enlisted several international donors to rebuild some of the Gypsy homes and several apartment blocks with the promise to move the lead-infected Gypsies back to their old neighborhood. Unfortunately, as soon as these homes and apartments were finished in the summer and fall of 2006, the UN did not give all the apartments to the Gypsies living on toxic wasteland, but mainly to Kosovo Gypsy refugees the UN wanted to bring back from Serbia and Montenegro to show that their return policy of refugees was working.

In April 2007 all food and medical aid at Osterode was stopped because the UN said it was running out of money. Once again the Gypsies were forced to find their only food by going through the local garbage cans. But worst of all was yet to come.

Because many children at Osterode and in the adjoining camp of Cesmin Lug were showing common signs of lead poisoning (lead on their teeth, daily vomiting, and memory loss), the camp leaders insisted on new blood test in April 2008. Random blood tests of 105 children showed staggering results. For many of the children living in the UN “lead safer” camp of Osterode, their lead levels had doubled since moving into the former French base.

Because the UN and UNHCHR refuse to help these citizens of Kosovo, I have appealed directly to the Minister of Health for the newly declared country of Kosovo. Dr. Alush Gashi is not only a medical doctor but also a personal friend of mine for several years. He once lived and worked in San Francisco. I not only appealed to him by email, but also visited him in his office, begging him to help his minority citizens. He understands the problem. He understands the situation. As a medical doctor he knows that these Gypsies need to be evacuated immediately. In a recently filmed interview with Dr. Gashi, he acknowledged that these Gypsies should be evacuated immediately, that they would be better off in prison than in the death camps. He said that USAID was funding a project with Mercy Corps to save these people.

It didn’t take me long to get a copy of the USAID/Mercy Corp project. It called for the resettlement of 50 of the 120 families living in the camps over the next 2.5 years. There was no immediate medical solution for anyone living in the camps. Evacuation was not mentioned. Later I found out that the author of the project has never even visited the camps. Yet USAID is handing over $2.4 million, for this cosmetic solution.

Since 2005 we have tried to force the UN to help these Gypsies. An American lawyer, Dianne Post, has tried to sue the UN on behalf of several hundred Gypsies living in these camps. Her lawsuit against the UN at the court of Human Rights in Strasbourg was turned down because the court declared that only a country, not an organization, could be sued. Although the UN was the sole administrator of Kosovo, the court decided that UN could not be sued.

The UN does have a policy of compensation for such problems. But UN lawyers for three years have refused to cooperate in seeking compensation for these Gypsies or resolving their health problems. The UN does not deny responsibility but refuses to comply with its own rules and standards.

In 2005 the Society for Threatened Peoples, the largest NGO in Germany after the Red Cross, brought to Kosovo the leading German expert on toxic poisoning, Dr. Klaus Runow. Although the UN tried to bar him from the camps, he was able to take about 60 hair samples from the Gypsy children. He sent the hair samples to a well-known laboratory in Chicago. The results showed that not only did many of the children have the highest lead levels in medical history, but that all had toxic poisoning from 36 other heavy metals as well. In trying to defend themselves, UN personnel have often claimed that the Gypsies got their lead poisoning from smelting car batteries. However, Dr. Runow pointed out that none of these other toxic metals are found in car batteries.

Dr. Rohko Kim, a Harvard trained medical doctor employed by WHO in Bonn, Germany, has been advising the UN on the lead poisoning in their camps in Kosovo. Although he is under orders not to give interviews or information about the Gypsy camps, I got him to speak to me. I asked him if the lead poisoning was due to the Gypsies smelting car batteries. He said no. He said most of the lead poisoning came from the toxic dust of the slagheap and from the fact that the camps were built on the tailing stands of the mines. He said that every child conceived in the camps would have irreversible brain damage. He said that we had already lost an entire generation of Gypsy children to lead poisoning. In a speech delivered in 2005 to WHO, UNMIK and the Kosovo Ministry of Health, Dr. Kim said: "The present situation in the Roma community who are now living in the camps is extremely serious. I have personally researched lead poisoning since 1991, but I have never seen in the literature a population with such a high level of lead in their blood. I believe that the lead poisoning in north Mitrovica is unique, which has never been known before in history. This is one of the biggest catastrophes connected with lead in the world and in history."

To date 77 Gypsies have died in the UN camps. Even more miscarriages have occurred. The UN has never investigated one death in the camps or ever made an autopsy. However, from the symptoms described by relatives and neighbors, doctors consulted believe that lead poisoning contributed to most of the deaths and miscarriages.

A few months ago another Gypsy baby died in Osterode. It was one month old and had been born with a large head, swollen belly and miniature legs. It woke at six in the morning, vomiting, and died twenty minutes later in hospital.

Lead poisoning is a hideous and painful death for children. Four-year-old Jenita Mehmeti was attending the camp kindergarten when her teacher noticed she was losing her memory and finding it hard to walk. Jenita was sent back to her barracks where for the next three months she vomited several times a day, before becoming paralyzed and dying.

There are precedents in Kosovo for saving lives, but not 500 Gypsy lives. Thus this appeal to you as MEPs. In Europe today we have a death camp for children. Please do something about it.

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Wednesday, October 8, 2008

Health inequalities: travelling communities

Published: 06 October 2008 09:00 Author: Richard O'Neill
Last Updated: 06 October 2008 09:00

The alarming levels of health inequalities experienced by travelling communities can be better understood and tackled by health professionals, says Richard O'Neill.

The health of Gypsy Roma Travellers is more scary tale than fairy tale. I know from first-hand experience of having been born and brought up in a caravan that accessing healthcare while on the road is never easy. In the four decades since then, it has not improved much.

Study after study shows that Gypsies and Travellers have the worst health of any ethnic minority in the country and the anecdotal evidence that my colleagues and I collect on our travels shows an even worse picture.

It can be worse still for men, who can just drop out of the health service altogether, only to re-engage with it when absolutely necessary, usually in accident and emergency. A cause for concern, yes - but also an opportunity to tackle the problem once and for all.

Health professionals often ask me how to engage with Gypsies and Travellers. How do you find them in the first place and how do you break down barriers?

First we need to understand why those barriers are there - and be prepared to work with and have the trust of people who do know where Travellers are. Hopefully these are people who have worked positively with the communities before, and ideally people from the community who have got involved as advocates and health trainers themselves.

They would know, for example, that there are far more Gypsies and Travellers resident in housing than on caravan sites and these housed people are often overlooked as they are effectively invisible to ethnic monitoring.

Gypsies and Travellers also have their own languages and a deep culture. It is essential for people who are going to work with them to receive cultural awareness training, and that community members themselves are made aware of your organisation's culture, what is and is not possible in terms of service and why certain systems exist.

(MORE)

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Wednesday, May 28, 2008

Averige Gypsy's Life Lasts 10 Years Less Than Bulgarian's

Published on: 26.05.2008, 12:01
Author: Kristalina Ilieva

A project of improving the conditions and integration of minority groups in unequal position starts in Razgrad area (Northeastern Bulgaria).

The project is financed by the EU grant program FAR and Bulgarian Healthcare Ministry.

Medicine researches show, the people belonging to minority groups live average 10 years less than the other societies in Bulgaria.

Most threatening is the possibility of heart shock or brain shock in the age between 40 and 49.

The project's actions preview preventive examinations of the minority members by portative medicine cabinet, which will travel round the regional cities.

The campaign also includes 100 experts in different areas, each of them trained for the initiative in order to increase the attention towards health care culture in the gypsies' societies and increasing of attention towards health prevention.

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Friday, February 8, 2008

Government call for more gypsy NHS care

By Oliver Evans

More efforts need to be made by the NHS and councils to address the health needs of gypsies and travellers, a Government reported released today states.

The recommendation is included in major report released today on improving the mental and physical well-being of people in the South East.

It states "joint strategic needs assessments" had to include "include intelligence on the health needs of excluded groups, for example black and minority ethnic groups and gypsies and travellers".

The South East England Health Strategy also says children should have lessons in "challenging cultural norms" and "communication and conflict resolution skills".

Obesity is high on the agenda for the strategy, which aims to reach out to voluntary and Government-funded organisations.

Among the other "key actions" are: More use of community pharmacies to help people stop smoking on the NHS.

A higher use of statins for people with heart disease.

More "weight management programmes".

Efforts to create areas "more conductive to physical activity".

Ensuring "full refurbishment of play areas as well as expand existing provision of play areas".

More routine enquiries about domestic abuse and violence by NHS staff.

A regional action plan to reduce obesity.

To increase breastfeeding rates.

Get more people to use "parenting skills programmes" for children "psychological or conduct disorders".

Identifying depression earlier in older people.

The strategy looks at six areas: health inequalities, sustainability, safer communities, employment and health, children and young people and later life.

Jonathan Shaw, Regional Minister for the South East: "Health is everyone's business.

"Although we have some of the healthiest communities in the UK, we also have some communities and groups who experience shocking health inequalities.

"Across the South East, differences in life expectancy of ten or more years can be found.

"Through this strategy, we aim to reduce the inequalities in health that exist between geographical areas and population groups across the region."

12:42pm Thursday 7th February 2008

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Thursday, August 23, 2007

Rules May Limit Health Program Aiding Children

From NY Times

By ROBERT PEAR

Published: August 21, 2007

The Bush administration, continuing its fight to stop states from expanding the popular Children’s Health Insurance Program, has adopted new standards that would make it much more difficult for New York, California and others to extend coverage to children in middle-income families.

Administration officials outlined the new standards in a letter sent to state health officials on Friday evening, in the middle of a monthlong Congressional recess. In interviews, they said the changes were intended to return the Children’s Health Insurance Program to its original focus on low-income children and to make sure the program did not become a substitute for private health coverage.

After learning of the new policy, some state officials said yesterday that it could cripple their efforts to cover more children and would impose standards that could not be met.

“We are horrified at the new federal policy,” said Ann Clemency Kohler, deputy commissioner of human services in New Jersey. “It will cause havoc with our program and could jeopardize coverage for thousands of children.”

Stan Rosenstein, the Medicaid director in California, said the new policy was “highly restrictive, much more restrictive than what we want to do.”

The poverty level for a family of four is set by the federal government at $20,650 in annual income. Many states have received federal permission to cover children with family incomes exceeding twice the poverty level — $41,300 for a family of four. In New York, which covers children up to 250 percent of the poverty level, the Legislature has passed a bill that would raise the limit to 400 percent— $82,600 for a family of four — but the change is subject to federal approval.

California wants to increase its income limit to 300 percent of the poverty level, from 250 percent. Pennsylvania recently raised its limit to 300 percent, from 200 percent. New Jersey has had a limit of 350 percent for more than five years.

As with issues like immigration, the White House is taking action on its own to advance policies that have not been embraced by Congress.

In his budget in February, President Bush proposed strict limits on family income for the child health program. Both houses of Congress voted this month to renew the program for five years, but neither chamber accepted that proposal. Legal authority for the program expires on Sept. 30.

The administration’s new policy is explained in a letter that was sent about 7:30 p.m. on Friday to state health officials from Dennis G. Smith, the director of the federal Center for Medicaid and State Operations. The policy would continue indefinitely, though Democrats in Congress could try to override it.

The Children’s Health Insurance Program has strong support from governors of both parties, including Republicans like Arnold Schwarzenegger of California, Tim Pawlenty of Minnesota and Sonny Perdue of Georgia. When the Senate passed a bill to expand the program this month, 18 Republican senators voted for it, in defiance of a veto threat from Mr. Bush. The House passed a more expansive bill and will try to work out differences with the Senate when Congress reconvenes next month.

In his letter, Mr. Smith set a high standard for states that want to raise eligibility for the child health program above 250 percent of the poverty level.

Before making such a change, Mr. Smith wrote, states must demonstrate that they have “enrolled at least 95 percent of children in the state below 200 percent of the federal poverty level” who are eligible for either Medicaid or the child health program.

Deborah S. Bachrach, a deputy commissioner in the New York State Health Department, said, “No state in the nation has a participation rate of 95 percent.”

And Cindy Mann, a research professor at the Health Policy Institute of Georgetown University, said, “No state would ever achieve that level of participation under the president’s budget proposals.”

The Congressional Budget Office has said that the president’s budget, which seeks $30 billion for the program from 2008 to 2012, is not enough to pay for current levels of enrollment, much less to cover children who are eligible but not enrolled.

When Congress created the Children’s Health Insurance Program in 1997, it said the purpose was to cover “uninsured low-income children.” Under the law, states are supposed to make sure public coverage “does not substitute for coverage under group health plans.”

In an interview yesterday, Mr. Smith said, “The program was always meant for children in lower-income families.” As a state increases its income limits, he said, “it’s more likely to substitute for private coverage.”

To minimize the risk of such substitution, Mr. Smith said in his letter, states should charge co-payments or premiums that approximate the cost of private coverage and should impose “waiting periods” to make sure middle-income children do not go directly from a private health plan to a public program.

If a state wants to set its income limit above 250 percent of the poverty level — $51,625 for a family of four — Mr. Smith said, “the state must establish a minimum of a one-year period of uninsurance for individuals” before they can receive public coverage.

That is considerably stricter than past requirements. In February, for example, the Bush administration allowed Pennsylvania to increase its income limit to 300 percent of the poverty level after the state agreed to a six-month waiting period for children who were 2 and older with family incomes exceeding 200 percent of the poverty level.

As another precaution, Mr. Smith said, states that want to cover children above 250 percent of the poverty level must show that “the number of children in the target population insured through private employers has not decreased by more than two percentage points over the prior five-year period.”

In New Jersey, which has a three-month waiting period, Ms. Kohler said, “we have no evidence of a decline in employer-sponsored coverage resulting from the Children’s Health Insurance Program.”

In the Senate debate this month, several Republicans offered a proposal similar to the new Bush administration policy. They wanted to require states to cover 95 percent of low-income children before allowing states to expand eligibility.

Senator Max Baucus, the Montana Democrat who is chairman of the Finance Committee, argued against the proposal, saying: “No state can meet 95 percent. No state currently meets 95 percent.”

In his letter, Mr. Smith said the new standards would apply to states that previously received federal approval to cover children with family incomes over 250 percent of the poverty level. Such states should amend their state plans to meet federal expectations within 12 months, or the Bush administration “may pursue corrective action,” Mr. Smith said.

Two Republican senators, Charles E. Grassley of Iowa and Pat Roberts of Kansas, urged the Bush administration last week to deny New York’s request to cover children with family incomes up to four times the poverty level. The proposal, they said, violates the original intent of Congress.

But Gov. Eliot Spitzer of New York said that, “contrary to the senators’ objections,” federal law allows states to set higher income limits. “Granting this expansion,” Mr. Spitzer said, “is essential to the health and well-being of New York’s children.”

http://www.nytimes.com/2007/08/21/washington/21health.html?pagewanted=all

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